The Jain Foundation, based in Seattle, WA, is a non-profit organization dedicated to advancing research and finding treatments for dysferlinopathy, a rare genetic muscle disorder. They support a wide range of initiatives, including funding studies, providing research tools and resources, organizing conferences and webinars, and offering travel grants for researchers. The foundation also works closely with patients and clinicians, providing information, support, and advocacy for those affected by dysferlinopathy.
With a mission to improve the understanding and management of dysferlinopathy, the Jain Foundation collaborates with industry partners and promotes collaborative research opportunities. They maintain a dysferlin registry, facilitate clinical trials and studies, and offer helpful links and resources for healthcare professionals. Through their dedicated efforts, the Jain Foundation strives to make a positive impact on the lives of individuals with dysferlinopathy and their families.
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