The Melorheostosis Association is a 501(c)(3) not-for-profit organization based in New York, NY, dedicated to finding the cause, treatments, and cure for melorheostosis, a rare and progressive disorder characterized by thickening of the cortical bone. They focus on promoting awareness, education, research, and advocacy efforts for those affected by the disease, as well as providing support and resources for treating physicians and researchers.
Through their world-renowned Medical Advisory Panel led by Dr. Michael P. Whyte, the Melorheostosis Association serves as the largest database of melorheostosis patients in the world, offering a community for patients and their families to share information, seek answers, and find support. They also strive to raise awareness among the medical community and encourage individuals affected by melorheostosis to come forward and be counted, as every dot on their maps represents a patient and a family facing the challenges of this condition.
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