EB Research Partnership is a non-profit organization based in New York, NY, dedicated to finding a cure for Epidermolysis Bullosa (EB), a rare and life-threatening genetic skin disorder that affects children from birth. Their innovative model focuses on accelerating the research process to find cures quickly, while ensuring financial responsibility and making a meaningful impact.
With a commitment to venture philanthropy, EB Research Partnership has garnered the highest charity ratings and works closely with a Scientific Advisory Board, conducting clinical trials and providing resources for the EB community. Through donations, sponsorships, and active events, they strive to raise awareness and funds to support their mission of healing EB and improving the lives of those affected by this challenging condition.
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