The Cute Syndrome Foundation, based in Troy, NY, is a non-profit organization dedicated to supporting individuals and families affected by SCN8A, also known as Cute Syndrome. They provide caregiver support, patient assistance grants, educational resources, and organize annual gatherings and events to bring together clinicians, researchers, and families. The foundation also promotes awareness and funds research initiatives to advance the understanding and treatment of SCN8A.
The Cute Syndrome Foundation prioritizes the privacy and confidentiality of personal data, ensuring that information provided by individuals is used solely for its intended purpose. They maintain accurate records and offer options for individuals to request the removal or deletion of their information. Through their website, they collect various types of data to improve their services and provide a better user experience, while also utilizing cookies and tracking technologies to enhance and analyze their online platform.
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