The Cameron and Hayden Lord Foundation, based in New York, NY, was established in 2001 by the families of Hayden and Cameron, who both battled the rare genetic disorder Tay-Sachs disease. The foundation's mission is to decrease the incidence of chronic and complex childhood diseases through medical research and to enhance the quality of care for families facing these challenges.
Through funding medical research, pediatric palliative care programs, and bereavement support, the foundation aims to make a meaningful impact on the lives of children and their families affected by serious illnesses. Their work is inspired by the memory of Hayden and Cameron, with a focus on providing comprehensive support and resources to those in need.
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