The Promise to Nicholas Foundation is a non-profit organization based in Bedford, Town of, NH, dedicated to raising awareness and providing support for families affected by Batten Disease. Their primary mission is to create partnerships that promote education, research, and ultimately find a cure for this childhood disease. Sadly, Nicholas, the inspiration behind the foundation, lost his battle to Batten Disease on his 11th birthday in 2014. In honor of Nicholas, the foundation continues to work tirelessly towards finding a cure and supporting families affected by this devastating disease.
Through various initiatives such as the annual Egg Hunt Fundraiser and the Nicholas Giving Tree Project, the foundation raises funds and sends holiday care packages to children with Batten Disease across the United States. These initiatives not only provide support and joy to affected families but also contribute to the ongoing research efforts to find a cure. With the support of generous donors and dedicated volunteers, the Promise to Nicholas Foundation is making a significant impact in the fight against Batten Disease and bringing hope to those affected by it.
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