The Robinow Syndrome Foundation is a small group of families in Andover, MN, dedicated to providing support and resources for individuals affected by this rare medical condition. They aim to create a community where members can share their experiences and find solace in one another's understanding.
With a focus on raising awareness and promoting research, the foundation offers a range of resources, including clinical testing information, convention details, and access to the latest research findings. Through their efforts, they strive to improve the lives of those impacted by Robinow Syndrome.
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