The Organic Acidemia Association is a non-profit organization based in Plymouth, MN, dedicated to supporting families and individuals affected by organic acidemia metabolic disorders. Their mission is to provide knowledge and resources to empower families and healthcare professionals, promote early intervention through expanded newborn screening, and fund research for improved treatment and potential cures in the field of organic acid disorders.
As a parent-led community, the Organic Acidemia Association aims to create a supportive network for families facing these inheritable genetic metabolic disorders. They offer a range of resources, including clinical trial information, nutrition assistance, and journal articles on new therapies. Through their blog and community events, they provide a platform for sharing experiences and connecting with others in the organic acidemia community.
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