FSHD Society is a non-profit organization based in Randolph, MA, dedicated to supporting individuals and families affected by facioscapulohumeral muscular dystrophy (FSHD). They provide resources, advocacy, and community engagement to raise awareness and improve quality of life for those impacted by the condition.
Through research initiatives and educational programs, FSHD Society strives to advance understanding of FSHD and promote collaboration within the medical and scientific communities. Their efforts aim to enhance support systems and drive progress towards effective treatments and ultimately a cure for this rare genetic disorder.
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