The Usher Syndrome Coalition, based in Maynard, MA, is a non-profit organization dedicated to supporting individuals and families affected by Usher syndrome, a genetic condition that causes both hearing and vision loss. They work with a wide range of partners and collaborators in the USH community to provide resources, advocacy, and support for those living with Usher syndrome.
The Coalition organizes events such as the USH Connections Conference, which offers educational sessions, networking opportunities, and support for individuals and families affected by Usher syndrome. They also provide information on living with Usher syndrome, resources for parents and young adults, and updates on current research and scientific advancements in the field.
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