The National Foundation for Ectodermal Dysplasias (NFED) is a non-profit organization based in Fairview Heights, IL. They empower and connect individuals and families affected by ectodermal dysplasias through education, support, and research.
NFED advocates for families affected by ectodermal dysplasias, working to close loopholes in insurance coverage for necessary medical and dental procedures. They provide resources, support, and assistance to help individuals navigate their healthcare journey. Through their research initiatives, NFED invests in studies and trials to advance understanding and treatment options for ectodermal dysplasias.
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