The National Marfan Foundation is a nonprofit organization based in Duluth, GA, dedicated to saving and improving the lives of individuals with genetic aortic and vascular conditions, such as Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome. They provide a supportive community and offer easy-to-understand resources for patients, families, healthcare professionals, and researchers.
With a focus on knowledge and advocacy, the foundation aims to raise awareness about the signs and symptoms of these conditions and empower individuals to fight for victory in their medical journey. Through their research grant program and scientific meetings, they contribute to advancements in the field and provide up-to-date and trustworthy information to those affected by these genetic conditions.
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