The Phelan-McDermid Syndrome Foundation, based in Osprey, FL, is dedicated to supporting individuals affected by the rare genetic disorder known as Phelan-McDermid syndrome. They strive to improve the lives of those with the condition through providing information, resources, and a supportive community for families.
With a focus on driving research breakthroughs and improving medical care, the foundation aims to bring hope, help, and answers to individuals living with Phelan-McDermid syndrome. Started by families who understand the challenges and joys of caring for someone with this complex condition, the foundation is committed to making a positive impact from diagnosis to treatment.
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