The Mathew Forbes Romer Foundation is a nonprofit organization based in Boca Raton, FL, dedicated to raising awareness, funding research, and providing support for children with fatal genetic diseases of the brain. Through their leadership and alliances, they have raised approximately $2.5 million for projects focused on research, education, genetic screening, and nursing school programs.
With a mission to prevent and eventually cure these devastating diseases, the foundation promotes critical initiatives such as testing, counseling, and research. They have made significant progress in gene therapy patient trials, education, and genetic testing, but continue to strive for earlier detection and expanded treatment options.
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