XP Grupo Luz de Esperanza, Inc, also known as XP Light of Hope Group, is a nonprofit organization based in Waterford, CT. Founded in 2012 by Fatima Perez, who herself lives with Xeroderma Pigmentosum (XP), the organization aims to improve the quality of life for individuals diagnosed with XP, as well as their families and caregivers. They provide support, education, and awareness about XP through their bilingual website, which is the first of its kind in Spanish, offering information on symptoms, treatments, and everyday living suggestions. Additionally, XP Grupo Luz de Esperanza works towards increasing medical research for a cure and organizes medical conferences to share current information about XP.
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